Link to great information on Hypotonia (Low Muscle Tone)

It has been so encouraging to see that so many people are finding my blog entry about my son's hypotonia (low muscle tone) and finding the information so helpful.  I wanted to share a link to a great website with more information about it, and will update Hayden's story soon.

click here

Comments

[Chelsie]

Your son's story sounds so similar to my son's. He is almost 4 1/2 and is just now starting PT, OT and speech. We are hoping to help him get caught up before he starts kindergarten in 2012. It frustrates me because I did talk with his pediatrician about this, and oh the clumbsiness, he's a boy, he'll grow out of it. All the same. I finally found a private therapy grouup that assesed him and now we know why certain things are happening. Thanks for your site.

[Edwin]

What a story...my 5 year old was recently diagnosed with hypotonia. He too has always been borderline but after starting Pre-K & being outside more he started having monthly Upper Respiratory Infections. We couldn't figure it out, kept searching for a food alergy (dairy, wheat, etc) & just thought he was acclimating to new germs. At 4 he was clumsy & held a decent weight but with each pre-k URI he dropped weight as the 'cold related asthma' & throat congestion would make it very hard to eat until he was better, which could be 10 days. He's a picky eater to start but during said colds he's almost all juice. Thanks to reading your article I now understand why when he's sick he can barely walk a city block or do any sort of physical activity. Hence, I wind up carrying him around NYC on my shoulders. Dept of Ed is working PT into his class schedule & we're getting some PT related items for home. The hypotonia I can handle, but preventing the URI seems impossible, a real losing battle. Have you updated the Albuterol & Flovent regiment?